Fundraising For Cystic Fibrosis
Together, the Cystic Fibrosis Institute (CFI) and the Cystic Fibrosis Center of Chicago is an active advocate for the CF community at large as well as individuals and families affected by this condition.
The CFI supports major CF initiatives and offers clinical assistance to those in need, advocating on behalf of individuals with CF and their families, engaging in research, evaluating new and cutting-edge CF treatments, and offering educational programs.
An annual fundraising campaign made possible by the generosity of so many enables us to perform this vital mission. Our efforts on behalf of the CF community have provided invaluable assistance and we look forward to continue serving this mission.
The Cystic Fibrosis Institute is committed to advocating for all individuals affected by CF on a local, regional and national level:
The Cystic Fibrosis Center of Chicago Advisory Council is dedicated to meeting unfilled needs of patients and parents alike. Our highly enthusiastic volunteer panel of patients, parents, and others continues to develop new projects designed to help their local CF community.
Our efforts have covered an incredibly broad spectrum from securing medications for those without adequate insurance coverage to providing mentorship for individuals and families dealing with the everyday struggles of life with cystic fibrosis. Learn more
Dr. Boas serves on the Illinois Department of Public Health Subcommittee for Newborn Screening, which successfully lobbied for mandatory screening for cystic fibrosis. In addition, we are very active in local CF Foundation activities and have contributed and supported Great Strides and other fundraisers.
Through service on national committees such as the American Association for Respiratory Care, the American Academy of Pediatrics, and the International Exercise Working Group for CF, Dr. Boas lends his voice in advocating for cystic fibrosis-related public policy, the development of position statements, and the creation of educational opportunities for the public and healthcare workers. Dr. Boas is a driving force in educating the healthcare community on all aspects of cystic fibrosis.
CFI Volunteer Staff
Steven R. Boas, MD, CEO
Dr. Boas is the founder and CEO of the Cystic Fibrosis Institute. As a pediatric pulmonologist, he is dedicated to the care of children and adolescents with acute or chronic respiratory disorders. His areas of expertise include pediatric asthma, cystic fibrosis, exercise-related disorders, chronic cough, and chest wall disorders.
Dr. Boas’ clinical private practice actively participates in both independent and national clinical research involving the newest therapies available for children with asthma and cystic fibrosis. He has authored dozens of book chapters and articles in national and international medical journals. Dr. Boas is highly sought out for his experience. He is often an invited speaker at regional, national, and international medical conferences, and he is a medical reviewer for exercise- and pulmonary-related journals.
Dr. Boas is also the medical director of the Cystic Fibrosis Center of Chicago. Founded on the principle of individualized care for people with CF, this comprehensive CF program has expanded and is now seeing patients in Glenview, Naperville, Hoffman Estates, and Lake Forest.
Dr. Boas has served on the Executive Committee for Pediatric Pulmonary Medicine at the American Academy of Pediatrics, chaired the Board of Medical Advisors for the American Association of Respiratory Care, and served as a member of the Board of Directors of the North American Society for Pediatric Sports Medicine. He also served on the Subcommittee for CF Newborn Screening of the Clinical and Laboratory Standards Institute (CLSI).
Dr. Boas earned his medical degree from the State University of New York at Stony Brook School of Medicine. He completed his pediatric residency at Boston City Hospital and Nassau County Medical Center in New York and his pediatric pulmonary fellowship at the Children's Hospital of Pittsburgh. Board certified in pediatric pulmonology, Dr. Boas has received awards from the Cystic Fibrosis Foundation for his research with children with CF.
Board of Directors
As a 501(c)3 not-for-profit organization, the Cystic Fibrosis Institute is governed by a 5-member board of directors from varied backgrounds including law, medicine, and banking. The Board's mission is to ensure that individuals with cystic fibrosis realize every opportunity to maximize their life's potential.
CFl's board is actively involved in all major policy initiatives and exercises fiduciary control over fundraising efforts and budgetary expenditures. The board's efforts and dedication have enabled the Cystic Fibrosis Institute to see tremendous growth in its mission and accomplishments.
Steven R. Boas, MD - CEO & President
Dr. Boas is a board-certified pediatric pulmonologist in private practice. He serves as the medical director of the Cystic Fibrosis Center of Chicago and also treats children and adolescents with a variety of other pulmonary disorders.
Dr. Boas is a professor at Northwestern University Feinberg School of Medicine and is also actively involved in cystic fibrosis-related clinical research. He created the Cystic Fibrosis Institute in 2003.
Andrew Bredfield is the business director for a Fortune 100 construction and engineering company. He has an MBA from DePaul University. Mr. Bredfield is passionate in helping the patients and families of children and young adults with cystic fibrosis.
Cheryl L. Boas
Ms. Boas is a graduate of Case Western Reserve University School of Law. She has been with the organization since 2003 and has extensive experience in patent law related to pharmaceutical biotechnology.
Mr. Laumbacher worked in the banking industry for over 25 years. His areas of expertise included accounting, finance, and global information technology. Mr. Laumbacher also serves on the Citizens Advisory Committee of the McHenry County Conservation District. Being a parent of two children with cystic fibrosis gives Mr. Laumbacher true insight into the challenges that CF presents.
Ms. Knipstein is a graduate of the University of Illinois College of Law and spent over 16 years in private practice. Her area of specialization is in municipal bonds and she was actively involved in litigation in this field. Ms. Knipstein is the parent of a child with cystic fibrosis and is keenly aware of the day-to-day issues those with CF face.
Volunteers are the lifeblood of CFl's programs. A dedicated and enthusiastic panel of patients, parents, and outside volunteers continues to develop new programs and initiatives to help their local CF community. Without these volunteer efforts, CFI would not be able to accomplish all that it has. New volunteers are always needed and we encourage all who can participate to join our worthwhile efforts.